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Fighting IFAP Syndrome with love and Capoeira
Podcast |
Sickboy
Publisher |
CBC
Media Type |
audio
Podknife tags |
Comedy
Health
Mental Health
Categories Via RSS |
Society & Culture
Publication Date |
Jun 28, 2021
Episode Duration |
00:54:45
Sapo and Lorena are the loving parents of little Nauê. Nauê was born with Ichthyosis follicularis, alopecia, and photophobia AKA IFAP syndrome. An extremely rare condition with a shortened life expectancy. Caring for a chronically ill child can be draining. But Sapo and Lorena have found a way of coping with the stress and connecting to their roots. Capoeira, a playful mix of martial arts and dance from their homeland, which they have immersed their son into to encourage play, love and courage.

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