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Submit ReviewMaybe it’s steroids? Maybe she’s born with it? Wait… no, she’s definitely born with it. It’s HAE. How fitting is it that Rare Disease Day falls on a fairly rare day, Feburary 29th! In this episode, the fellas sit down with Jordyn Campbell, who not only shares her eye-opening journey with hereditary angioedema (HAE) but also how she's punching back with advocacy and awareness. What the hell is HAE? Here’s the elevator pitch - your body decides to puff up like a balloon at the most inconvenient times, thanks to a rare genetic curveball. Welcome to Jordyn's world, where getting swole is just part of the daily routine, no gym membership needed. But there's more to her story than just coping with HAE. Through battles with misdiagnoses and the quest for the right treatment, Jordyn highlights the brighter side of her condition, including her impactful work with HAE Canada and finding unexpected joys in life's challenges. To cap it all off in the wrap-up, the boys are diving into a cheeky discussion about a recent study from plastic surgeons on the ideal male buttocks. Thankfully the Gen-Z consultant came high key came through to translate the science with a zero dose of cringe. The TLDR; This deep dive into male booty aesthetics fills a big ol' gap in the glow-up science, giving us the 411 on what's peak for the peach. These gems could pave the way for next-level booty sculpting moves, making sure bros walking into the OR can walk out feeling 100.
Stick around for the end of the show to hear Jordyn’s latest single “Hit and Run”
Key Takeaways
- Hereditary angioedema (HAE) is a rare genetic condition characterized by severe swelling of various body parts.
- Receiving a diagnosis for HAE can be challenging, with many individuals experiencing misdiagnosis or a lack of clear answers.
- Living with HAE can have a significant impact on daily life, including work, relationships, and sexual activity.
- Advocacy and raising awareness are crucial for individuals with HAE to receive proper care and support.
- The availability and coverage of different medications for HAE vary from province to province, leading to variations in treatment for patients.
- Finding the right drug for HAE patients can be complex, as different drugs work differently for each individual based on their gene mutation.
- The decision to have children when living with a hereditary condition like HAE involves considering the potential impact on the child's life and the parents' preparedness to handle the challenges.
- Genetic testing can provide valuable information for individuals considering having children, allowing them to make informed decisions about their family planning.
- HAE has not taken anything away from Jordyn's life, and she sees it as a part of her normalcy. It has given her confidence, the ability to help others, and a platform to share her experiences.
- Having a hereditary condition like HAE can shape one's perspective on life and provide a unique understanding and preparedness for the challenges it presents.
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In this heart-tugging episode, the fellas dive into a tale of resilience, love, and the complexities of kidney transplantation with one ultimate goal - finding a Kidney for our dear friend, Ellie. Ellie is a rockstar nurse battling kidney disease. She opens up about her journey through kidney failure, dialysis, and the quest for a second transplant after her first one has hit a rough patch. Ellie's story is nothing short of a rollercoaster. She sheds light on the emotional and logistical hurdles of finding a kidney match, all while juggling life with her superhero partner, Keegan, and contemplating the future of their family.
But it doesn’t end there! Jeremie then chats with Candice Coghlan from the Centre for Living Organ Donation, who brings her own kidney transplant tale and heaps of knowledge about the kidney-paired exchange program. Candice debunks transplant myths, giving us the lowdown on how we can play a part in this life-saving process.
To cap it all off, the boys share a laugh over a bizarre encounter with a patient simulation robot that's eerily reminiscent of a 10-year-old boy, because what's a deep dive into medical marvels without a touch of Chucky being sliced open over and over again before ultimately turning on his “care providers”?
Here’s the thing folks. This isn’t just another episode of Sickboy. This is a mission. Help us find a kidney for Ellie! For more information check out the links below.
Key Takeaways
- Kidney disease can have a significant impact on a person's life, requiring dialysis and potentially multiple kidney transplants.
- Finding a compatible donor for a kidney transplant can be challenging, especially for individuals with a high level of antibodies.
- Kidney disease can affect decisions about family planning, and options such as freezing eggs may be considered.
- The kidney-paired exchange program increases the chances of finding a compatible kidney for transplantation.
- Donating a kidney can save someone's life, and individuals can enter the program as directed donors or non-directed anonymous donors.
- Living with kidney disease can take away the ability to feel carefree, but it can also foster empathy for others.
- Nurses play a crucial role in the healthcare system and are often underappreciated and undervalued.
- Spreading awareness about the kidney donation program can help more people find suitable donors.
- The kidney paired exchange program allows people with living donors who are not compatible to find a suitable match through a national registry.
- Potential kidney donors go through a rigorous evaluation process to ensure they are healthy enough to donate.
- Living kidney donors can live healthy, normal lives with just one kidney.
In the event of a potential organ donor, please call (902) 473-2222 and have the on-call Donor Transplant Coordinator at the QEII paged.
Follow Ellie's story on Instagram: @kidneyforellie
Find more information on UHN Transplant:
- https://www.youtube.com/channel/UCAMBVV4rdvQTo14ts34phBg
- https://www.uhn.ca/Transplant
- Instagram: @givelifeuhn
Follow Sickboy:
Instagram: https://www.instagram.com/sickboypodcast
Tiktok: https://www.tiktok.com/@sickboypodcast
Discord: https://discord.gg/expeUDN
Support Sickboy:
Patreon - https://www.patreon.com/sickboy
This is it. The end of Sickboy... as you've come to know it that is. This is the final FGF episode but fear not! We're not going anywhere. We're just evolving. It’s been almost ten years and hundreds of episodes since we sat down and recorded our first episode, which is crazy. For those of you who’ve been listening from the start, we love you so much! And today we have some big news. Starting next week, we’re experimenting with a fresh new format to bring you one epic episode a week full of all elements that make Sickboy what it is — We can't begin to express how much we love you for your continued support. With that, lets throw back to the very first Feel Good Friday recording we ever did.
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