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- Connecting ALS
- Publisher |
- ALS Association
- Media Type |
- audio
- Publication Date |
- Apr 28, 2022
- Episode Duration |
- 00:23:49
This week, Jeremy talks to Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement at the EveryLife Foundation for Rare Disease to talk about their recent report on the economic burden of rare diseases.
To read the EveryLife Foundation’s report, go to https://everylifefoundation.org/burden-study/
Learn more about navigating the financial harms associated with ALS at https://www.als.org/navigating-als/financial-information
Sign up to become an advocate at https://www.als.org/advocacy
This episode is brought to you by The ALS Association in partnership with CitizenRacecar.
This week, Jeremy talks to Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement at the EveryLife Foundation for Rare Disease to talk about their recent report on the economic burden of rare diseases.
To read the EveryLife Foundation’s report, go to https://everylifefoundation.org/burden-study/
Learn more about navigating the financial harms associated with ALS at https://www.als.org/navigating-als/financial-information
Sign up to become an advocate at https://www.als.org/advocacy
This episode is brought to you by The ALS Association in partnership with CitizenRacecar.
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