Healthcare activist Ady Barkan has died at the age of 39 of the neurodegenerative disease ALS. After his diagnosis in 2016, Barkan dedicated his life to the fight for single-payer healthcare. He continued to speak out even after ALS left him physically unable to talk, communicating with a computerized system that translated his eye movements into spoken words. In 2019, he used the device to deliver powerful opening remarks at the first-ever congressional hearing on Medicare for All. His story is told in the documentary Not Going Quietly. In 2021, Democracy Now! spoke with Ady Barkan just ahead of the film’s premiere.