Alice Wong On Medicaid, Rage, and “Good Care”
Publisher |
WNYC Studios
Media Type |
audio
Publication Date |
Mar 29, 2023
Episode Duration |
00:44:59

Growing up near Indianapolis in the '80s and '90s, Alice Wong was eager to leave. "I knew life was going to be so much better once I got into college," she said. Alice was raised in an immigrant household, and while there was a local Chinese-American community, she rarely saw people who looked like her in the mostly white community of disabled people she was also a part of.

Back in 2020, Alice and Anna talked about how she learned to advocate for herself as a young adult, finding a community that felt like home, and managing finances on Medicaid. Since then, Alice has published a new memoir, Year of the Tiger: An Activist’s Life, and then, last summer, faced a medical emergency that left her without the ability to speak or eat. She recorded an update for us using a text-to-speech app.

 


You can read more of Alice’s recent essays in Teen Vogue, for CNN, and on the Disability Visibility Project’s website.

 

Anna first talked with disability rights activist Alice Wong in 2020 about self-advocacy, as well as how she manages money, Medicaid, and her and her parents' futures. But after a health crisis, Alice shared an update.

You can read more of Alice’s recent essays in Teen Vogue (https://www.teenvogue.com/story/alice-wong-hospitalization-crowdfunding-community), for CNN (https://www.cnn.com/2023/02/22/opinions/caregiver-advocacy-legislation-wong-ctrp/index.html), and on the Disability Visibility Project’s website (https://disabilityvisibilityproject.com/2022/08/07/my-icu-summer-a-photo-essay/).

Did you know we have a weekly email newsletter for the Death, Sex & Money community? Every Wednesday we send out a note from Anna, fascinating listener letters from our inbox, and updates from the show. Sign up at deathsexmoney.org/newsletter, and follow the show on Twitter, Facebook, and Instagram.

Got a story to share? Email us at deathsexmoney@wnyc.org.

Anna first talked with disability rights activist Alice Wong in 2020 about self-advocacy, as well as how she manages money, Medicaid, and her and her parents' futures. But after a health crisis, Alice shared an update.

You can read more of Alice’s recent essays in Teen Vogue (https://www.teenvogue.com/story/alice-wong-hospitalization-crowdfunding-community), for CNN (https://www.cnn.com/2023/02/22/opinions/caregiver-advocacy-legislation-wong-ctrp/index.html), and on the Disability Visibility Project’s website (https://disabilityvisibilityproject.com/2022/08/07/my-icu-summer-a-photo-essay/).

Did you know we have a weekly email newsletter for the Death, Sex & Money community? Every Wednesday we send out a note from Anna, fascinating listener letters from our inbox, and updates from the show. Sign up at deathsexmoney.org/newsletter, and follow the show on Twitter, Facebook, and Instagram.

Got a story to share? Email us at deathsexmoney@wnyc.org.

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