Podknife - "Advocacy in Action..." by Connecting ALS

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"Advocacy in Action..."

Podcast |: Connecting ALS
Publisher |: ALS Association
Media Type |: audio
Podknife tags |: Health,; Illness,; Interview,; Society & Culture
Categories Via RSS |: Health & Fitness,; Society & Culture
Publication Date |: Jun 09, 2022
Episode Duration |: 00:26:32

Description
iTunes Summary

This week, Jeremy is joined by Dr. Neil Thakur, chief mission officer at The ALS Association, and Melanie Lendnal, the Association’s senior vice president of policy and advocacy, to get an update on the fight to make AMX0035 available, preview the 2022 ALS Association Advocacy Conference, and dig into the role advocates play in making ALS livable.

Send an email to the FDA telling them to approve AMX0035 as soon as possible at www.als.org/fda

Learn more about the tofersen trial results at https://www.als.org/stories-news/biogen-announces-promising-findings-tofersen-trial

For the latest on the fight for approval and access to AMX0035, go to https://www.als.org/stories-news/fda-extends-timeline-amx0035-review

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

Welcome to Connecting ALS. This week we get an update on the fight to make AMX0035 available, preview the 2022 ALS Association Advocacy Conference, and dig into the role advocates play in making ALS livable.

Send an email to the FDA telling them to approve AMX0035 as soon as possible at www.als.org/fda

Learn more about the tofersen trial results at https://www.als.org/stories-news/biogen-announces-promising-findings-tofersen-trial

For the latest on the fight for approval and access to AMX0035, go to https://www.als.org/stories-news/fda-extends-timeline-amx0035-review

This episode is brought to you by The ALS Association in partnership with CitizenRacecar.

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